I found out my daughter is on the spectrum. She's almost 4 and can communicate in single sentences. She has trouble handling emotions. It's been rough since she turned 3. A lot of tantrums for little things. Sometimes 3- 4 a day that last > 2hrs. I'm still learning about autism and how to deal with everything but I constantly find myself thinking about my daughter's future lately. Questions like, "will she be bullied at school?"," will she have a normal life?","will she have trouble making friends?". I talk to my daughter's therapist and they usually give me a very sugar coated answer. I'm trying to collect some information from people who have level 1 autism. How has it affected your life? What kind of support structure helped you the most? What do I need to do as a parent to make sure I'm supporting my daughter the best I can? I also worry about me dying these days because that means my daughter will have to fend for herself. My close friends and family don't understand autism and don't try very hard to understand it. I don't blame them, but this leaves me in a very lonely position. I cannot trust anyone else to take care of my daughter if I die. I don't know if I sound overly dramatic, but these are the thoughts I have. I would love to hear from people who have gone through similar experiences.
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But as I grew older, I decided to throw myself into a foreign country to pursue tertiary education. My mom gave me her support and I picked the subject I love most and I excelled in it. I did make some good friends along the way too. Now I turned out fine, working in tech and doing well for myself.
So I guess picking the right environment that could offer your daughter the proper support is really important. If you are in a country that does not have a strong mental health support in the education systems. I’d strongly suggest moving elsewhere…. My mom and family don’t understand autism much and you are already doing a fantastic job by being aware of it. Also, it’s important to guide her in finding her passion. You got this!
I'm not sure if you have other kids but sometimes when parents find out about one of their kids having ASD, they can get tunnel vision and the other kids can feel left out and can start acting out to get attention.
to me that sounds like an instant action item to change the therapist, to one that is actually useful
Curious for my own situation - how old was the mother?
Meanwhile, if you don't mind, would you, like Layoffs inquired, be OK to share your and your wife's age when you had your daughter? Would help us be aware. Thank you!
My brother, on the other hand was diagnosed around 5-6 years old, and was constantly in and out of doctors/therapist offices his entire childhood. He missed school, didn’t make friends. Failed exams. He’s now nearly 30 still living with our parents and has no social life.
So, make of that what you will but please, don’t let it define them.
Beyond this it’s lots of patience and love. Therapy can be helpful too.